Wed-12-01-2022, 15:29 PM
Around 25% of people with psoriasis will go on to also get psoriatic arthritis and believe me, it's a life changer and can ruin your life.
I first got it aged 30 around 5 years after getting psoriasis, it was mild at first and I managed to live with it mostly by taking pain killers but eventually I had to seek help and was put in Methotrexate. I hated the stuff and I'm known for speaking my mind about it being a poison that should no longer be prescribed, anyway I decided to give it up and just try to put up with it which I managed to do for a few years with some days being worse than others.
But once day around 15 years ago know the psoriatic arthritis came back with a vengeance and my whole body started locking up in immense pain, I took loads of pain killers but it soon became obvious I was never going to cope as I couldn't dress myself or even lift a cup to my mouth properly so I decided to beg for help at my doctors surgery.
I was immediately given an urgent appointment with a dermatologist where I was pleasantly surprised to find that things had moved on a lot in the various treatments being used and was offered my first biologic response modifier (Bio) as I refused to go back on Methotrexate. My first one was "Remicade" and it changed my life as after a month I could already feel the pain going and movement getting easier day by day.
My self-esteem was better and I was walking around with a smile on my face again, but it didn't last and I had to try another Bio "Humira" that worked however I had a reaction to it and ended up in hospital for a week. It was around then that I started trawling the internet for advice only to find there were a huge amount of scams trying to pull me in with their so called cures (there is no cure by the way) or other sites seemed more interested in advertising, sponsorship deals or pesky requests for donations.
I just wanted some good honest advice from people just like me and even when I thought I had found a couple of places I soon realised that I just didn't feel welcome. So after trying another Bio "Enbrel" I decided to start my own forum and see if I could attract other people like me looking for a safe and friendly place away from the scams and fat cats just wanting to get fatter, and Psoriasis Club was born.
Well today I'm on my 7th Bio and so far it's been the best one ever and I'm pleased to say that my quest to find others like me worked and that forum I started almost 12 years ago is still there offering genuine information about psoriatic arthritis and psoriasis, and over those years it has gained a reputation of being very friendly supportive and welcoming to new members.
You just need just need to find us, but do to not having a large budget, sponsors or donations it's not easy as I refuse to end up like those sites I first found. But if you do want to find us or read more about my time with different psoriatic arthritis treatments you can do so here psoriasisclub.org
Maybe I'll see you there.
Fred.
I first got it aged 30 around 5 years after getting psoriasis, it was mild at first and I managed to live with it mostly by taking pain killers but eventually I had to seek help and was put in Methotrexate. I hated the stuff and I'm known for speaking my mind about it being a poison that should no longer be prescribed, anyway I decided to give it up and just try to put up with it which I managed to do for a few years with some days being worse than others.
But once day around 15 years ago know the psoriatic arthritis came back with a vengeance and my whole body started locking up in immense pain, I took loads of pain killers but it soon became obvious I was never going to cope as I couldn't dress myself or even lift a cup to my mouth properly so I decided to beg for help at my doctors surgery.
I was immediately given an urgent appointment with a dermatologist where I was pleasantly surprised to find that things had moved on a lot in the various treatments being used and was offered my first biologic response modifier (Bio) as I refused to go back on Methotrexate. My first one was "Remicade" and it changed my life as after a month I could already feel the pain going and movement getting easier day by day.
My self-esteem was better and I was walking around with a smile on my face again, but it didn't last and I had to try another Bio "Humira" that worked however I had a reaction to it and ended up in hospital for a week. It was around then that I started trawling the internet for advice only to find there were a huge amount of scams trying to pull me in with their so called cures (there is no cure by the way) or other sites seemed more interested in advertising, sponsorship deals or pesky requests for donations.
I just wanted some good honest advice from people just like me and even when I thought I had found a couple of places I soon realised that I just didn't feel welcome. So after trying another Bio "Enbrel" I decided to start my own forum and see if I could attract other people like me looking for a safe and friendly place away from the scams and fat cats just wanting to get fatter, and Psoriasis Club was born.
Well today I'm on my 7th Bio and so far it's been the best one ever and I'm pleased to say that my quest to find others like me worked and that forum I started almost 12 years ago is still there offering genuine information about psoriatic arthritis and psoriasis, and over those years it has gained a reputation of being very friendly supportive and welcoming to new members.
You just need just need to find us, but do to not having a large budget, sponsors or donations it's not easy as I refuse to end up like those sites I first found. But if you do want to find us or read more about my time with different psoriatic arthritis treatments you can do so here psoriasisclub.org
Maybe I'll see you there.
Fred.